PACE Network

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The Promoting Access and Care through Centres of Excellence (PACE) network brings together leading inflammatory bowel disease (IBD) centres to advance best practices for medical professionals and elevate the standard of care for patients in Canada with IBD.
 
Launched in 2016, PACE is Canada’s first national network of IBD Centres of Excellence. Through collaborative research efforts between the centres, the network aims to address existing gaps in how people with Crohn’s disease or ulcerative colitis access care. Evidence gathered through research and clinical care will be the catalyst for changes in the public healthcare system.
 
What is an IBD Centre of Excellence?
 
To receive optimal care for Crohn’s or colitis, patients require a multidisciplinary team. When that team of specialists is scattered at various sites, it makes it difficult for patients to coordinate multiple visits and have their multi-faceted needs met.
 
For the PACE network, an IBD Centre of Excellence houses a team of medical professionals skilled in various areas to provide more complete care to people with Crohn’s or colitis. PACE sites provide leadership, research, and training for IBD care.
 
Servicing remote communities through telemedicine
 
This initiative out of Toronto’s Mount Sinai Hospital looks to extend specialized Crohn’s and colitis care to underserved communities. Dr. Geoff Nguyen and his team have identified geographic regions across Canada where people with IBD have difficulty accessing specialized care.
 
The team at Mount Sinai Hospital are expanding telemedicine accessibility to patients through nurses who specialize in treating IBD while utilizing existing provincial telemedicine infrastructure. A clinical trial evaluating telemedicine offerings is underway in Ontario with a view to expand the program across the country.
 
Learn more about Mount Sinai’s PACE IBD telemedicine program
Learn more about the Ontario Telemedicine Network
 
Monitoring patient health between visits
 
Dr. John Marshall and Dr. Neeraj Narula at McMaster University in Hamilton are helping patients take a more active role in their healthcare by implementing a tool that allows patients and healthcare teams to better monitor the patients’ disease between planned visits. The electronic reporting tool also gives healthcare providers more robust information during visits with patients.
 
Once the reporting tool is piloted, it will be integrated into clinical care practices at other PACE centres, and work in tandem with the telemedicine program noted above.
 
Reducing chronic steroid use
 
People with Crohn’s or colitis are often prescribed steroids to control their symptoms. While this treatment can be effective at relieving symptoms, it carries the potential for a number of short and long-term side effects.
 
Dr. Richard Fedorak, Dr. Remo Panaccione, and Dr. Cynthia Seow at the University of Alberta and the University of Calgary are developing and implementing a clinical care pathway that offers healthcare providers guidelines on how to limit or avoid steroid use. The clinical care pathway will be integrated into clinical practices across PACE sites, and then nationally, to standardize care for IBD patients and reduce chronic steroid use.
 
Measuring healthcare advances
 
Dr. Alain Bitton and Dr. Waqqas Afif at McGill University in Montreal are establishing quality indicators, based on current evidence and patient input, that will measure the effectiveness of PACE initiatives and other IBD quality improvement programs.
 
Additionally, the PACE team are collaborating with Crohn’s and colitis specialists to develop and implement a web-based, quality improvement self-assessment tool to identify gaps in care, change the focus to patient centred care delivery, and standardize care on a national level. It is an innovative model designed to improve quality of care by establishing standardized and, where possible, evidence-based milestones and self-assessment metrics for ongoing quality improvement activities for IBD clinics and healthcare professionals.
 
News

Access to Specialists and Emergency Department Visits in Inflammatory Bowel Disease
Selection of Quality Indicators in IBD: Integrating Physician and Patient Perspectives
Transforming Access to Specialist Care for Inflammatory Bowel Disease: The PACE Telemedicine Program​
PACE marks its second year with further progress in raising the standards of Crohn’s and colitis care
PACE program adds a new partner in Thunder Bay 
PACE program adds new site co-lead in Calgary
The progress of PACE, one year after launch
Bringing care closer to people with Crohn’s or colitis
New Crohn's and Colitis Canada Network Unites World-Class Canadian Healthcare Centres
 
Strengthen the PACE network
 
Donations to Crohn’s and Colitis Canada allow the PACE network to carry on its vital work and elevate inflammatory bowel disease care. Click here to make a donation. To find out more about how you can contribute to PACE, contact Katy Devitt, Manager of Research Programs at Crohn’s and Colitis Canada.

  • Canada has among the highest incidence rates of Crohn's and colitis in the world.
  • 1 in 140 Canadians lives with Crohn’s or colitis.
  • Families new to Canada are developing these diseases for the first time.
  • Incidence of Crohn’s in Canadian kids under 10 has doubled since 1995.
  • People are most commonly diagnosed before age 30.

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